Upcoming Forum To Highlight Parkinson's Advocacy
Released on: March 16, 2009, 6:19 am
Author: Arbor Books
Industry: Non Profit
(Springfield, GA)—The Parkinson’s Action Network (PAN) will
host its annual Research & Public Policy Forum on March 15-17 in
Washington, D.C. It’s a chance for one of PAN’s state coordinators to
continue an advocacy she bolstered with her wildly successful book.
Kay Mixson Jenkins is the south Georgia state coordinator for PAN and the founder of
Parkinson’s in the Park. She is also a published author whose book, Who Is Pee Dee?
Explaining Parkinson’s Disease to a Child, was recently purchased for overseas
The book follows a boy named Colt and his toy panda bear, Pee Dee, as they seek to
understand the chronic illness and its effects on Colt’s mother. The book has drawn
praise from Parkinson’s advocates and patients alike.
“I’ve heard from people all over the country who have told me that prior to reading
the book, their children never asked them about their Parkinson’s,” says Ms.
Jenkins. “I had one gentleman call me from Illinois to tell me that his godson had
bought him a stuffed bear to comfort him during a hospital visit.”
Ms. Jenkins says the forum is a good way for Parkinson’s patients to lobby their
representatives, a battle she says sometimes feels hopeless.
“We’ve struggled for years to convince our legislators to dedicate more money to
research,” says Ms. Jenkins, “They’ve watched us just deteriorate each year and you
can’t move them.”
Ms. Jenkins will not be attending the PAN forum in Washington, D.C. because her
husband is battling cancer. It will be the first time she has missed the event since
2002. Ms. Jenkins was diagnosed with PD at the age of thirty-four and has been an
advocate for research and patient support since then. Her book, which was published
by the pharmaceutical company UCB, has gained a following among families touched by
Who Is Pee Dee? includes resources for Parkinson’s patients and valuable lessons for
their children, including:
• An easy-to-understand explanation of the disease
• Examples of how loved ones might be affected by the disease
• Encouragement and reinforcement that the children have done nothing wrong
• Fun ways in which children can help their loved ones feel better
“There will be five advocates from Georgia going to the forum,” says Ms. Jenkins.“We’re going to keep trying to change the legislators’ minds.”
Kay Mixson Jenkins is the Georgia state co-coordinator for the Parkinson’s Action
Network, leads the Effingham County Parkinson’s support group and was selected as a
Parkinson’s patient advocate for UCB, Inc.
For more information, contact the author directly via kmj@ParkinsonsInThePark.org.
(Who Is Pee Dee? Explaining Parkinson’s Disease to a Child by Kay Mixson Jenkins;
illustrated by Richard Morgan; ISBN: 978-0-9819129-0-5; $12.95; 33 pages; 8” x 8”;
hardcover; UCB, Inc.)
Contact Details: UCB, INC.
1950 Lake Park Dr., Smyrna, GA 30080
Contact: Kay Mixson Jenkins
Phone: 912-655-5293 E-mail: kmj@ParkinsonsInThePark.org
Websites: www.WhoIsPeeDee.com, www.ParkinsonsInThePark.org